Welcome!

Celebrating Abilities Inc. started as a support group located in southwest Florida for parents of children with different abilities. We are no longer active as a group because we've all moved on to other areas of the United States. I've decided to keep the blog active so that information can be shared with our loyal families and some new ones, too.

If you have any further questions, please contact:
hawkinsj68@gmail.com or ceenic123@aol.com


Have a blessed day!

Friday, February 29, 2008



This video was created for Down Syndrome Awareness Month and was played as part of the morning service at The First Baptist Church of Haverhill, MA.

"Welcome to Holland" is a short story by Emily Perl Kingsley and descibes what it is like to raise a child with a disability.

"Sometimes Miracles Hide" is a song written by Bruce Carroll describing the experiences he and his wife faced when learning the news that their daughter would be born with a disability. As with many parents who have faced this challenge, this song expresses our own experiences and feelings. I hope you find joy and inspiration from it as well!

Thanks to Dave, Cher, Pastor Howard and the members of FBC; family and friends; and many blessings to the families of Morning Travelers. Please visit MorningTravelers.org for more information

NDSS/NDSC Legislative Update

Newsline Legislative Update


Pre-Natally and Post-Natally Diagnosed Conditions Awareness Act


To: NDSC and NDSS Members and Affiliated Parent Groups
From: Susan Goodman, Director, Governmental Affairs, NDSC
Madeleine Will, Vice President & Director, NDSS Policy Center

Date: February 28, 2008


On February 27, 2008 the Pre-Natally and Post-Natally Diagnosed Conditions Awareness Act (S. 1810), co-sponsored by Senators Edward Kennedy (D.MA) and Sam Brownback (R.KS) was "voted out of the committee." This means that the next step is for the bill to be scheduled for a vote by the full Senate. Senate staff thanked NDSC and NDSS for our efforts in moving the bill. Although this is a great victory, our work is far from over! We will continue to track all developments in the Senate. The next step is for a bill to be introduced and passed in the House of Representatives. It is likely that a bill will be introduced soon and the process of moving it through will begin. We will, as always, keep readers updated and Call for Action at times when our advocacy efforts will be most effective. The bill that was reported out of committee will be posted on http://thomas.loc.gov soon. However, the precise time is not known. At that time we will publish a summary of the contents of the bill.

If you have questions about this alert, please contact Susang1961@aol.com or mwill@ndss.org.



This legislative update was approved by NDSC and NDSS for joint distribution on Friday, February 29th.

Urgent Action Alert: Mental Health Parity is within reach!

Urge March 5 House Vote for Parity


February 28, 2008--We have been pushing hard since 2001 to enact full mental
health parity. Now, thanks to your outreach to legislators and the advocacy of
many others across the nation, victory is at last within reach. Following theSenate's
historic passage of the Mental Health Parity Act (S. 558) by unanimous consent in
September, the House is poised to take up its bill, H.R. 1424, on Wednesday, March 5.
Parity supporters across America should contact their Representative NOW
to urge his or her vote for H.R. 1424. Senate and House leaders should continue
to work together to reconcile differences between the versions and produce a bill
that can pass in both chambers.
Please Act Now!

Use the toll-free Parity Hotline, 1-866-parity4 (1-866-727-4894), to call your
U.S. Representative. (The Parity Hotline reaches the Capitol switchboard,
which can connect callers to their members of Congress). If you are not sure
of your Representative's name, you can find it by entering your zip code at
www.congress.org.

Message: "I am calling to ask that the Representative vote for H.R. 1424,
the Paul Wellstone Mental Health & Addiction Equity Act. Parity is a fair and
affordable solution to insurance discrimination. It will save lives and families."

Background

The Paul Wellstone Mental Health and Addiction Equity Act of 2007 expands the
Mental Health Parity Act of 1996 by prohibiting group health plans from
imposing treatment or financial limitations on mental health benefits that are
different from those applied to medical/surgical services. The legislation
applies only to group health plans already providing mental health benefits
and exempts plans sponsored by small businesses with fewer than 50 employees.
For extensive information, see the Bazelon Center's December 2007 Parity
Alert and the link there to the Mental Health Liaison Group's Parity page.

FDDC 2008 Legislative Platform

The Florida Developmental Disabilities Council, Inc. is proud to unveil
their 2008 Legislative Platform.

Please go to www.fddc.org anytime to access these issues as one page
documents.

2008 LEGISLATIVE PLATFORM SUMMARY
http://fddc.org/PPA/2008/Summary.doc

http://fddc.org/PPA/2008/Work%20Incentive%20Medicaid.doc
Incentive Medicaid Coverage: Insuring Health Care Access for Persons with
Developmental Disabilities
The Florida Developmental Disabilities Council Inc. supports a Work
Incentive Medicaid Coverage Program that allows individuals the ability to
work, keep vital health coverage and lower the dependence on government
assistance.

http://fddc.org/PPA/2008/Supporting%20Individuals.doc
Disabilities Medicaid Waiver Services
Developmental Disability waiver programs are essential for individuals with
Developmental disabilities and their families and must be protected.

http://fddc.org/PPA/2008/Oral%20Health%20Care.doc
Access to Oral Health Care for individuals with Developmental Disabilities
Support the Agency for Health Care Administration with their high priority
legislative budget request for increases in Medicaid reimbursement rates for
oral health services


http://fddc.org/PPA/2008/Protect%20Early%20Steps.doc
Early Steps, Florida's Part C Program
Protect funding to the Part C Early Intervention program to effectively
serve all children with a developmental delay or those who are at risk of
developing one.

http://fddc.org/PPA/2008/Prepaid%20Therapy.doc
the Prepaid Therapy Services Program for children
The council opposes managed care for these services because it will limit
access to providers and the choice of therapists. Ultimately a reduction in
services will be the result of working within a budget reduced by 20%.


http://fddc.org/PPA/2008/John%20McKay.doc
McKay Scholarships for Students with Disabilities Program
Support medically necessary flexible schooling hours for children with
disabilities through the McKay Scholarship

http://fddc.org/PPA/2008/ESE.doc
Exceptional Student Education Guaranteed Allocation
Keep the Exceptional Student Education Guaranteed Allocation for the
students who need these services to succeed in the classroom.


http://fddc.org/PPA/2008/Employment%20First.doc
Employment First
Create a system where integrated, gainful employment is the first option
available for all individuals with developmental disabilities.

Autism and Co-Existing Mental Health Disorders

A Free Conference

Limited Space, Register Today!

AUTISM AND CO-EXISTING MENTAL HEALTH DISORDERS

Date: Friday, May 9, 2008

Location: Florida Gulf Coast University Campus, Ft. Myers, FL

The conference flyer may be downloaded from the CARD website at
http://card-usf.fmhi.usf.edu/CARDannounce/08_0509_ASD_MH_Conf.pdf

Registration Information: The conference is free of charge, however, space is limited to 200 registrants.
Registration for the conference is available through the Personnel Development Partnerships' website at http://pdp.fgcu.edu/ .

Registration Opens: February 2, 2008 - Registration Deadline: April 4, 2008
Featured Speakers
Autism in the 21st Century
Martin Lubetsky, M.D.
Dr. Martin J. Lubetsky is Associate Professor of Child and Adolescent Psychiatry at the University of Pittsburgh School of Medicine, and the Chief of Child and Adolescent Psychiatry Services and Center for Autism and Developmental Disorders at Western Psychiatric Institute and Clinic of University of Pittsburgh Medical Center.
Promoting Mental Health in Persons with Autism Spectrum Disorders
Mohammad Ghaziuddin, M.D.
Dr. Mohammad Ghaziuddin is a board certified child and adolescent psychiatrist with expertise in the diagnosis and treatment of mental disorders in persons with autism and Asperger syndrome. He is the Director of the Autism Spectrum Disorders Program in the Department of Psychiatry at the University of Michigan, Ann Arbor. He has authored several publications on autism and related disorders and is a member of the editorial board of many professional journals.
Family-focused, cognitive-behavioral interventions to reduce anxiety for verbally fluent children and adolescents with Autism Spectrum Disorders
Susan Hepburn, Ph.D. and Jennifer Durocher, Ph.D.
Dr. Susan Hepburn is a licensed clinical psychologist and the Director of Research for the JFK Partners, University Center for Excellence in Developmental Disabilities at the University of Colorado at Denver. Clinically, Dr. Hepburn is active in school consultation and family-focused interventions for children with autism and other developmental disorders. Her research has focused recently on development, assessment, and intervention of anxiety disorders in children with autism spectrum disorders.

Dr. Durocher has worked with individuals with autism and their families for fifteen years. In addition to her role as Assistant Director of UM-NSU CARD, Dr. Durocher is a Clinical Assistant Professor of Psychology. She is currently involved in research on interventions for improving joint attention skills in young children with ASDs.

Fiesta By The Bay

Fiesta by the bay

The third annual fund raiser for CARD.

Date: Friday, April 18, 2008

Location: Gaspar's Grotto, 1805 E 7th Ave, Tampa FL
Time: Doors open at 5:30 pm

Admission: $25 per person Checks payable to USF Foundation

Plan to join CARD-USF for great music, food and drinks, salsa dance lessons, and prizes while supporting the Center for Autism and Related Disabilities at USF.

For more information, contact Christine Rover by email at crover@fmhi.usf.edu or by phone at 813-974-9264.
http://card-usf.fmhi.usf.edu/CARDannounce/2008_Fiesta_Invitation.pdf

Autism-The Musical!

Autism-The Musical!
Date: March 2, 2008
Time: 3:50 pm

Location: Channelside Cinemas, Tampa
Everyone can buy tickets on-line at the link below:
http://gasparilla2008.bside.com/2008/?tabArg=_profile&_view=_festivalcalendar or at the Box Office that day. Since we expect this screening to sellout, we strongly encourage on-line purchasing

The Gasparilla Film Festival- 2008 is proud to announce the Tampa Bay premiere of 'Autism-The Musical' during the 2008 Gasparilla Film Festival!

Following five Los Angeles children over the course of six months, director Tricia Regan captures the struggles and triumphs of their family lives and observes how this musical production gives these performers a comfort zone in which they can explore their creative sides.

Both on and off stage, 'Autism- The Musical' is a call-to-arms, bringing attention to a modern-day epidemic, all the while celebrating the way the human spirit can overcome any challenge.

Here is a link to a review from Variety:
http://www.variety.com/review/VE1117933474.html?categoryid=31&cs=1
Here is a trailer of the movie + short interview with the filmmaker
(3 minutes): http://www.youtube.com/watch?v=0DR1w4LdOB8

"Ya'll are just stupid kids" video

"Ya'll are just stupid kids" video of a teacher in Texas...........
http://abcnews.go.com/Video/playerIndex?id=4350016&affil=wzvn


Email the principal and let him know what you think of this teacher......
http://es.houstonisd.org/MemorialES/

"Retard" --Speech made by a Fremd High School Senior

"Retard" --Speech made by a Fremd High School Senior

[written by Soeren Palumbo who is a senior honors student and big brother to Olivia. During Writer's Week, he gave the following speech that he wrote to a gymnasium full of his high school peers and faculty and received a standing ovation.]

Speech:

I want to tell you a quick story before I start. I was walking through our hallways, not minding my own business, listening to the conversations around me. As I passed the front door on my way to my English classroom, I heard the dialog between two friends nearby. For reasons of privacy, I would rather not give away their race or gender.

So the one girl leans to the other, pointing to the back of a young man washing the glass panes of the front door, and says, "Oh my gaw! I think it is so cute that our school brings in the black kids from around the district to wash our windows!" The other girl looked up, widened her slanted Asian eyes and called to the window washer, easily loud enough for him to hear, "Hey, Negro! You missed a spot!" The young man did not turn around. The first girl smiled a bland smile that all white girls - hell, all white people - have and walked on.

A group of Mexicans stood by and laughed (that high pitch laugh that all of them have). So, now it's your turn. What do you think the black window washer did? What would you do in that situation? Do you think he turned and calmly explained the fallacies of racism and showed the girls the error of their way? That's the one thing that makes racism, or any discrimination, less powerful in my mind. No matter how biased or bigoted a comment or action may be, the guy can turnaround and explain why racism is wrong and, if worst comes to worst, punch em in the face.

Discrimination against those who can defend themselves, obviously, cannot survive. What would be far worse is if we discriminated against those who cannot defend themselves. What then, could be worse than racism? Look around you and thank God that we don't live in a world that discriminates and despises those who cannot defend themselves. Thank God that every one of us in this room, in this school hates racism and sexism and by that logic discrimination in general. Thank God that every one in this institution is dedicated to the ideal of mutual respect and love for our fellow human beings. Then pinch yourself for living in a dream. Then pinch the hypocrites sitting next to you. Then pinch the hypocrite that is you. Pinch yourself once for each time you have looked at one of your fellow human beings with a mental handicap and laughed. Pinch yourself for each and every time you denounced discrimination only to turn and hate those around you without the ability to defend themselves, the only ones around you without the ability to defend themselves. Pinch yourself for each time you have called yourself or someone else a "retard".

If you have been wondering about my opening story, I'll tell you that it didn't happen, not as I described it. Can you guess what I changed? No, it wasn't the focused hate on one person, and no it wasn't the slanted Asian eyes or cookie cutter features white people have or that shrill Hispanic hyena laugh (yeah, it hurts when people make assumptions about your person and use them against you doesn't it?). The girl didn't say "hey Negro." There was no black person. It was a mentally handicapped boy washing the windows. It was "Hey retard." I removed the word retard. I removed the word that destroys the dignity of our most innocent. I removed the single most hateful word in the entire English language. I don't understand why we use the word; I don't think I ever will.

In such an era of political correctness, why is it that retard is still OK? Why do we allow it? Why don't we stop using the word? Maybe students can't handle stopping- I hope that offends you students, it was meant to - but I don't think the adults, here can either. Students, look at your teacher, look at every member of this faculty. I am willing to bet that every one of them would throw a fit if they heard the word fagot or nigger - hell the word Negro - used in their classroom. But how many of them would raise a finger against the word retard? How many of them have? Teachers, feel free to raise your hand or call attention to yourself through some other means if you have. That's what I thought.

Clearly, this obviously isn't a problem contained within our age group. So why am I doing this? Why do I risk being misunderstood and resented by this school's student body and staff? Because I know how much you can learn from people, all people, even - no, not even, especially - the mentally handicapped. I know this because every morning I wake up and I come downstairs and I sit across from my sister, quietly eating her Cheerios's. And as I sit down she sets her spoon down on the table and she looks at me, her strawberry blond hair hanging over her freckled face almost completely hides the question mark shaped scar above her ear from her brain surgery two Christmases ago. She looks at me and she smiles. She has a beautiful smile; it lights up her face. Her two front teeth are faintly stained from the years of intense epilepsy medication but, I don't notice that anymore. I lean over to her and say, "Good morning, Olivia." She stares at me for a moment and says quickly, "Good morning, Soeren," and goes back to her Cheerios's. I sit there for a minute, thinking about what to say. "What are you going to do at school today, Olivia?" She looks up again. "Gonna see Mista Bee!" she replies loudly, hugging herself slightly and looking up. Mr. B. is her gym teacher and perhaps her favorite man outside of our family on the entire planet and Olivia is thoroughly convinced that she will be having gym class every day of the week. I like to view it as wishful thinking. She finishes her Cheerios's and grabs her favorite blue backpack and waits for her bus driver, Miss Debbie, who, like clockwork, arrives at our house at exactly 7'o'clock each morning. She gives me a quick hug goodbye and runs excitedly to the bus, ecstatic for another day of school.

And I watch the bus disappear around the turn and I can't help but remember the jokes. The short bus. The retard rocket. No matter what she does, no matter how much she loves those around her, she will always be the butt of some immature kid's joke. She will always be the butt of some mature kid's joke. She will always be the butt of some "adult"'s joke. By no fault of her own, she will spend her entire life being stared at and judged. Despite the fact that she will never hate, never judge, never make fun of, never hurt, she will never be accepted. That's why I'm doing this. I'm doing this because I don't think you understand how much you hurt others when you hate. And maybe you don't realize that you hate. But that's what it is; your preemptive dismissal of them, your dehumanization of them, your mockery of them, it's nothing but another form of hate. It's more hateful than racism, more hateful than sexism, more hateful than anything. I'm doing this so that each and every one of you, student or teacher, thinks before the next time you use the word "retard", before the next time you shrug off someone else's use of the word "retard".

Think of the people you hurt, both the mentally handicapped and those who love them. If you have to, think of my sister. Think about how she can find more happiness in the blowing of a bubble and watching it float away than most of us will in our entire lives. Think about how she will always love everyone unconditionally. Think about how she will never hate. Then think about which one of you is "retarded".

Maybe this has become more of an issue today because society is changing, slowly, to be sure, but changing nonetheless. The mentally handicapped aren't being locked in their family's basement anymore. The mentally handicapped aren't rotting like criminals in institutions. Our fellow human beings are walking among us, attending school with us, entering the work force with us, asking for nothing but acceptance, giving nothing but love. As we become more accepting and less hateful, more and more handicapped individuals will finally be able to participate in the society that has shunned them for so long. You will see more of them working in places you go, at Dominicks, at Jewel, at Wal-Mart.

Someday, I hope more than anything, one of these people that you see will be my sister. I want to leave you with one last thought. I didn't ask to have a mentally handicapped sister. She didn't choose to be mentally handicapped. But I wouldn't trade it for anything. I have learned infinitely more from her simple words and love than I have from any classroom of "higher education". I only hope that, one-day, each of you will open your hearts enough to experience true unconditional love, because that is all any of them want to give. I hope that, someday, someone will love you as much as Olivia loves me. I hope that, someday, you will love somebody as much as I love her.

I love you, Olivia.

Soeren Palumbo

Tuesday, February 26, 2008

Opening campuses

Chance to Cheer

Tiers have been approved..........

We have been notified that approval has been given by CMS( Center for
Medicaid and Medicare) for the 2 new waivers. APD was required to develop
this in the last legislation session(SB1124). These additional waivers are
in the planning stage for implementation. This will provide the framework
for the 4 tiers.


Below is the information from the APD website:

The proposed 4 - tiered waiver system
In addition to the changes listed above, the Agency for Health Care
Administration, in consultation with the Agency for Persons with
Disabilities, is required to seek federal approval for two additional
waivers and implement a four-tiered waiver system. The new waiver system
calls for waiver clients to be assigned to one of four "tiers", based on
an assessment of their needs, according to the following criteria:
Tier 1 – Current DD waiver with no cap: Limited to individuals with
intensive medical, behavioral and adaptive needs that cannot be met
in other tiers.
Tier 2 – Capped at $55,000: Limited to clients whose service needs
include a licensed residential facility and greater than five hours
a day of Residential Habilitation as well as clients in supported
living who receive more than six hours of in-home support services
Tier 3 – Capped at $35,000: Will include all individuals who do not
fall into Tier 1 or Tier 2.
Tier 4 – Current FSL waiver with a cap of nearly $15,000: Additional
services may be added to this tier after July 1, 2008.



Marsha Vollmar
Area Administrator
Agency for Persons with Disabilities
Area 8
P.O. Box 60085
Fort Myers, FL 33906
(239) 338-1370
Fax (239) 338-1355
I am writing to encourage all of you who have family members who will
eventually need or are currently waiting in need of Medicaid waivers to
join the National, newly structured NOEWAIT@yahoogroups.com. For those of
you who want to know more about this movement, please go to yahoogroups and
look.

What we are trying to do: Raise the national consciousness of people who
are waiting for services thru Medicaid. These are services which will keep
people at home, in their communities, with and/or near families. We want to
bring attention to our elected officials that we will not be silent any
longer. Our family members with disabilities are citizens of this country
and deserve the ability to live life in the community.

Many states have their own end the wait programs. Some states have NOTHING-
no end the wait, no wait list , no list at all.. IF you are in one of
those states, then you especially want to be aware of the national
movement. The national movement is to ENHANCE the local movement and gather
information for those who have nothing in place.

I ask all of you to read and consider becoming a part of this "END THE WAIT
_UNLOCK THE WAITING LIST>

WE CAN, We WILL, WE MUST end the wait - TOGETHER
**FOR IMMEDIATE RELEASE**



TO LOWE’S: THANK YOU! TO CBS: HOW

HARD IS IT TO SAY YOU’RE SORRY?



(CLEARWATER, FL) – Family Network on Disabilities of Florida (FND) is today applauding the action of Lowe’s, the home improvement company. Lowe’s announced that they are pulling their advertising from the CBS show Big Brother because of the use of a slur against persons with disabilities by one of the contestants.


Rich La Belle, Executive Director of FND, stated: “Thank you, Lowe’s, for being a great corporate citizen and taking this courageous action.” La Belle went on to repeat FND’s call for an apology from CBS: “This show is not a news event that CBS is reporting on. They have complete control over what appears on the air. After all, why do you think they have so many people listed as ‘editors’ and ‘assistant editors’ and ‘segment producers’? Editors are the definition of control – they control what comes out and what gets left in, just like this slur was left in.”


La Belle stated: “The airwaves are owned by we, the people. They’re a public trust and CBS has to be held accountable for allowing this on the air. If this had been a racial slur, CBS would have taken immediate action, like they’ve done in the past. All we’re asking for here is a simple apology. How hard can that be?”


Advertisers and sponsors of the Big Brother episode during which the slur against persons with disabilities was used include some of the biggest household names in the country: Macy’s, Honda, K Mart, Nickelodeon Movies, Winn Dixie, Slim Fast, Quiznos, Pet Smart, Applebee’s, Stouffer’s, V8, JC Penny, Circuit City, Denny’s, Taco Bell, Kohl’s, Visa, Bertolli, Zales, Dell, and Vaseline.


According to La Belle: “I think it’s ironic that CBS ran a PSA for HIV awareness during this particular episode and ended the spot with a logo saying ‘CBS Cares.’ They need to show people with disabilities and their families that CBS cares about them, too.”


La Belle stated that FND’s call for a boycott will continue until CBS apologizes. “The advertisers and sponsors of Big Brother and CBS should do what Lowe’s did. They should listen to their customers, employees, and viewers who are persons with disabilities and their families. They should do the right thing, just like Lowe’s.”

Rich La Belle
Executive Director
Family Network on Disabilities of Florida, Inc.
2735 Whitney Rd.
Clearwater, FL 33760
(727) 523-1130/(800) 825-5736
Fax: (727) 523-8687
www.fndfl.org
The Danger of Antibiotic Overuse:

http://www.kidshealth.org/parent/general/sick/antibiotic_overuse.html

I Have A Voice - Gigi's Playhouse

Wednesday, February 20, 2008

HMMMMMMMM.................................

Looks like SOMEONE in Washington is doing some logical thinking...........

http://www.washingtonpost.com/wp-dyn/content/article/2008/02/18/AR2008021802126.html

Monday, February 18, 2008

UNC Professor Suggests Abortion

http://www.lifenews.com/state2906.html

University of North Carolina Prof Suggests Abortion for Down Syndrome Babies

by Steven Ertelt
LifeNews.com Editor
February 17, 2008

Chapel Hill, NC (LifeNews.com) -- A University of North Carolina professor is under fire for suggesting that parents who discover their unborn child will have Down syndrome should have abortions. The comments offended one student who has a brother with the condition and highlighted attempts by disabilities groups to head off abortion as a solution to the disability.

Professor Albert Harris told his embryology students last week that babies who have Down syndrome should be aborted.

"In my opinion, the moral thing for older mothers to do is to have amniocentesis, as soon during pregnancy as is safe for the fetus, test whether placental cells have a third chromosome #21, and abort the fetus if it does," he said, according to a Raleigh news and Observer report.

Harris has taught at the college for 35 years and he told the newspaper he's made the pro-abortion statement several times before in an attempt to spark discussion.

He told the newspaper he has no apologies for the remark.

"I know somebody who had a child like this, and it ruined their life," he said.

Ironically, he also indicated he likely wouldn't have an abortion if he and his wife were pregnant with a disabled baby.

But Lara Frame, a senior in the biology class, told the Raleigh newspaper the comment offended her because she has a brother with the condition.

"Biology is not an opinion subject," she said. "It's a facts-based subject. And though abortion is legal, it's not a fact that you should abort every baby with Down syndrome."

Harris' comment comes at time when Down syndrome advocacy groups are dealing with the American College of Obstetricians and Gynecologists, which has been suggesting all pregnant women test for disabilities and consider an abortion if a baby is disabled.

Studies have shown anywhere from 59 to 92 percent of pregnancies end in abortion when a baby with Down syndrome is involved.

Amy Allison, executive director of the Down Syndrome Guild of Greater Kansas City, told the Associated Press, "I think you can see rather quickly why our community would be concerned about it when you are talking about eliminating a whole race of people."

Pro-life Sen. Sam Brownback has worked on a Congressional bill that would require physicians to provide more information to prospective parents about raising a child with Down syndrome and referrals to help networks.

ACTION: Contact UNC about Professor Harris at Office of the Chancellor, 103 South Building, Campus Box 9100, Chapel Hill, NC 27599-9100. Email chancellor@unc.edu, call (919) 962-1365 or fax (919) 962-1647.

Sunday, February 17, 2008

Boycott Big Brother!!!!

FND CALLS FOR BOYCOTT OF BIG BROTHER FOR USE OF SLUR


Family Network on Disabilities of Florida, Inc. (FND) is calling today for a boycott of the CBS show "Big Brother" because of the actions of one of its contestants in using a slur against persons with disabilities. Adam Jasinski, who identifies himself as doing public relations work for the United Autism Foundation, refers to persons with autism as "r*t**ds" and, when called on it by another contestant, repeatedly defends his actions. Immediately after his use of the slur, he states "I can call them whatever I want. I work with them all day long, okay?" He then turns to another contestant and says "I'm not saying anything offensive, right or wrong, bro." He goes on to state that "I don't think I said anything bad" and "I say what I mean and that's it."

According to FND's Executive Director, Rich La Belle: "CBS intentionally chose this piece, from all of the other footage of all the contestants, to broadcast on national television. We are calling for a boycott because neither CBS nor the Big Brother producers placed this incident in any context or offered an apology for Jasinski's extremely offensive comments. They simply treated it like just another part of the entertainment on the show - more controversy to spice things up. If Jasinski had used a racial slur, I'm positive they would not have done this. This particular word is the equivalent of a racial slur against persons with disabilities. CBS should not have broadcast this or, if they chose to, they should have pointed it out for what it is. Regardless of how far Jasinski makes it in this show, we are encouraging all persons with disabilities, their families, friends, and all persons who believe in fairness and equality to boycott this show until CBS issues a formal apology."

FND is also calling on the United Autism Foundation to immediately repudiate Jasinski's statements and to cut all ties with him. Says La Belle: "If you truly believe in the rights of persons with disabilities, you can't keep associating with this guy." As of this writing, the website of the United Autism Foundation continues to prominently feature its relationship with Jasinski, offering for sale only items that are connected with him and his appearance on Big Brother.

La Belle states: "This has got to stop. Persons with disabilities deserve an apology for this - not to be used as a ratings booster."

FND is a grassroots organization for persons with disabilities and their families. FND serves all disabilities and all ages and has done so for more than 20 years. For more information on FND or anything contained in this press release, please contact Rich La Belle, Executive Director, at 727 523 1130 or at richlabelle@fndfl.org.

Rich La Belle
Executive Director
Family Network on Disabilities of Florida, Inc.
2735 Whitney Rd.
Clearwater, FL 33760
(727) 523-1130/(800) 825-5736
Fax: (727) 523-8687
www.fndfl.org

Home-Based Speech Therapy

Thousands of homeschooling families are using these manuals in place of going to weekly therapy. Incorporate speech or language therapy into five minute segments through out the day making speech therapy an everyday part of life. It's not rocket science. Here is the information you need to become your child's speech and language therapist.

http://nathhan.org/ResourceRoom/straight_talk.htm

Hatchbacks for AFOs

http://www.hatchbacksfootwear.com/elites.html

Introducing Hatchbacks Elites, a new line of shoes designed specifically to address the needs of children wearing AFO's, DAFO's, and orthotics.

Every Hatchbacks shoe incorporates a patented Rear-Entry hinge system called "Easy Fit" that's as simple as 1, 2, 3. The "Easy Fit" system is designed to facilitate ease of entry and egress from the shoe by pivoting open at the hinge. The shoe remains firmly closed by a Velcro fastener that is also very easy to use.

To make an Elite shoe, we took our "Easy Fit" system and created a custom last molded around a brace. This new last provides extra width around the toe box, extra girth around the ankle, and more room around the heel. This means that most children will be able to wear Hatchbacks Elites that are the same size as their foot. No more wearing shoes two sizes too big! We took this specialized last and added a lightweight sole, quality materials, extra tough stitching, and great contemporary styling.

Saturday, February 16, 2008

Wake Up Call Show

Dear Florida Parents,

You are invited to participate in blogtalkradio "WAKE UP CALL SHOW" this Monday night February 18 at 8 P.M. thru 10 p.m. 1- 646-716-8675 .
Subject for calls: Restraint and Seclusion, Intimidation, Bullying at IEP Meetings, Forged Documents, Retaliation and The broken process of filing a complaint.

This is an internet show that is broadcasted around the world via computer or cell phone so please do not mention full names of any school staff or school names. Retaliation is very popular right now.
http://www.blogtalkradio.com/wakeupcallshow



A Day in the Park
with
Celebrating Abilities Inc.

A gathering for families with children of all abilities


Sunday, March 2, 2008
@ 1pm

at the playground
(A mega structure playground with various elements for all persons to enjoy and is designed as an inclusive and completely accessible structure.)

Jim Jeffers Park
2810 SW 3rd Lane Cape Coral, Florida 33991

Bring lunch for your family and a dessert to share!

Any questions? Contact:
Jacqui - 471-7334 or Tracy - 561-9868

Come meet us!!!

FL-SAC

The Florida Association of School Advisory Councils grew out of an email discussion group started October 27, 1999. President Dwayne Mundy reports that, "We have been hearing common concerns from across Florida and are using email to share innovative solutions. We call the new association FL-SAC and we will continue to use the Internet as our means of primary means of communications."

We care greatly that all students receive a quality education in Florida's public schools. Florida Statutes mandate that each School Advisory Council adopts a school improvement plan - a local blueprint on how to best improve our local school.

Our goal is to allow members to discuss School Advisory Council practices - sharing common problems and innovative solutions. FL-SAC is a statewide association open to all. Through increased sharing and dialogue, closed doors are opening and solutions are being found to help lead our children to successful lives in the 21st century.

This is an exciting time to be involved in school improvement. Parents, teachers and community members involved in school improvement are invited to become members of the Florida Association of School Advisory Councils - FL-SAC.

To join the Florida Association of School Advisory Councils or learn more, visit http://groups.yahoo.com/group/FL-SAC

Hope Haven

Hope Haven
4600 Beach Boulevard
Jacksonville, FL 32207

Phone: (904) 346-5100
Fax: (904) 346-5111


Down Syndrome is a congenital disorder caused by chromosomal abnormalities that result in highly variable degrees of learning difficulties and physical development. Hope Haven’s Down Syndrome Center provides evaluations in the areas of medial, speech/communications, gross motor, fine motor, behavioral/social and educational development. It also provides parent and family resources, support services, and prenatal/newborn consultations.
Evaluations of Children with Down Syndrome

Referrals are accepted from agencies, physicians or by direct parent contact. Team or individual appointments are available for children ages prenatal to 18 years. Using assessments and guidelines specifically designed for individuals with Down syndrome, the DSC offers parents a comprehensive overview of their child’s progress in all areas of growth and development. DSC professionals focus on the potential of each child to grow, learn and behave in an educational and/or home environment. Each visit begins with an educational consultation, followed by strength-based evaluations in the areas requested. These evaluations are designed to obtain the most accurate picture of the child’s individual potential.

Families choose the Down Syndrome Center at Hope Haven for many reasons:

* They would like to know more about the newest findings on Down syndrome and the impact these findings can have in their child’s life.
* They desire a professional opinion on the overall development and potential of their child.
* They wish to ensure that they are doing everything possible for their child.
* They are seeking suggestions for behavior improvement in school and/or at home.
* They believe their child is not realizing his/her full potential in the current learning environment.
* Their child is ready for transition from one level of education to the next.
* They are looking for ways to work with their child at home in addition to regular services being received or in place of outside services.

Therapies for Children with Down Syndrome

Hope Haven provides many of recommended services for children with Down syndrome including:

* occupational therapy
* physical therapy
* speech and language therapy
* tutoring and educational supports
* behavioral/social skills instruction.

Families accessing services through the Down Syndrome Center at Hope Haven receive a comprehensive report on their child’s strengths with recommendations for maximizing potential. This report can serve as information for the school setting and individualized education program (IEP) preparation as well as at-home involvement. School observations, psychological testing, and/or social skills consultations are available upon request.

Families can also be provided with an opportunity to meet with the director of computer instruction and tutoring for an overview of computer programs appropriate for their child. The Down Syndrome Association’s Resource Library is made available, and family networking is encouraged. Notices of recommended follow-up are routinely provided.

Free Inspiration Software Trial

http://www.inspiration.com/freetrial/index.cfm
Download a free trial

Our free downloads contain fully functioning versions of the software. You'll receive the complete symbol palettes, as well as loads of templates, activities and examples to get you started using the product.

Kidspiration
Created for K-5 learners, Kidspiration develops thinking, literacy and numeracy skills using proven visual learning principles. In reading and writing, Kidspiration strengthens word recognition, vocabulary, comprehension and written expression. With visual math tools, students build reasoning and problem solving skills. Across the curriculum, students express their creativity and thinking with pictures, words and numbers.

Inspiration
Powered by the proven strategies of visual learning, Inspiration® is the essential tool students grade 6 to adult rely on to plan, research and complete projects successfully. Students develop essential learning strategies as they create graphic organizers to visually represent concepts and relationships. As a result, students gain and retain a better understanding of concepts and demonstrate knowledge, improving their performance across the curriculum.

InspireData
InspireData builds critical data literacy skills and engages students. More than 100 content-rich databases, the e-Survey tool and database templates jumpstart data collection. Students actively explore and analyze data using dynamic Venn diagrams and bar, stack, pie and axis plots to interpret information and draw conclusions. Teachers use InspireData to identify classroom trends and support data-driven decision making.

Bachman Pretzels and Autism Speaks

Coming Soon: Our New Puzzle Pretzel!

Our new pretzel in the shape of the Autism SpeaksTM puzzle piece logo debuts in mid-March 2008, and will be available in grocery stores in the Northeast and online at www.bachmanpretzels.com. The launch coincides with Autism Awareness Month in April, and April 2, 2008, which will be the first U.N. sanctioned World Autism Awareness Day. Five percent of the proceeds from the sale of the Puzzle Pretzel will be donated to Autism Speaks.

The Puzzle Pretzel with its unique, fun shape continues the Bachman tradition of quality pretzels and snacks. Puzzle Pretzels are low in fat, cholesterol free and a good source of calcium. Baked for a crispy, crunchy bite, they’re perfect for snacking and dipping.

The Puzzle Pretzel shape represents the logo of Autism Speaks, the largest non-profit organization dedicated to increasing awareness of autism and raising money for research. In early 2007, Bachman formed a partnership with Autism Speaks, and launched an awareness campaign with the placement of autism information stickers on the bags of their most popular pretzels and snacks. The new Puzzle Pretzel was created to help reach millions of parents to continue to promote awareness of autism spectrum disorders (ASD).

Welcome to Foggy Rock!

Welcome to FoggyRock.

By registering with FoggyRock, you will be a member of a dynamic new community that cares as much about special needs as you do. You will be able to create and publish your own Personal Page. From there you will have access to the member directory, the groups, the forums and the library of the FoggyRock Community. You will also be able to draw other members to your site by the use of keywords or "tags". FoggyRock wants to assist you in being your best and making a difference. Your climb starts here...

Friday, February 15, 2008

Horrifying in Tampa, FL

UPDATE: Deputy seen dumping man from wheelchair faces felony charge
By The Associated Press

Story Created: Feb 14, 2008 at 3:24 PM EST

Story Updated: Feb 15, 2008 at 10:09 PM EST
TAMPA, Fla. (AP) - A deputy who was videotaped dumping a paralyzed man from a wheelchair onto a jailhouse floor now faces arrest.

Hillsborough County Sheriff David Gee announced tonight that an arrest warrant has been issued for Charlette Marshall-Jones. The veteran deputy was seen tipping Brian Sterner out of his wheelchair during booking.

Gee says Marshall-Jones knows about the warrant, but he does not know when she will turn herself is. She faces a charge of abuse of a disabled person, a third-degree felony.

If convicted, she could be sent to prison for five years.

Sterner had been arrested January 29th on a warrant for a traffic charge. He had called for charges to be filed against Marshall-Jones.

(Copyright 2008 by The Associated Press. All Rights Reserved.)



State opens review of man dumped from wheelchair
02/14/08

TAMPA, Fla. (AP) - Florida Attorney General's office is looking into whether the civil rights of a paralyzed man dumped onto a jailhouse floor were violated.

Surveillance video shows a veteran deputy tipping Brian Sterner out of his wheelchair onto the floor of the from the Orient Road Jail after his arrest Jan. 29 on a traffic warrant.

Attorney General Bill McCollum announced a review of the incident Thursday. If his office finds deputies violated Sterner's civil rights, it could sue on his behalf for up to $10,000 per infraction.

Four detention deputies have been suspended because of the incident.

Hillsborough County Sheriff David Gee issued a formal apology to Sterner Wednesday. The 32-year-old says he would like to see criminal charges filed.


(Copyright 2008 by The Associated Press. All Rights Reserved.)

Beware of Phishing!!!

Phishing is a term used when scammers falsify their identity, normally by stating they represent a legitimate corporation or governmental agency. They then try to entice the consumer into revealing their personal information such as bank account numbers, Social Security numbers, passwords, or other sensitive data. Phishing attacks can happen through either the internet, email, regular mail, or your telephone. Regardless of what method is used, it is important to remember that you should never reveal your personal information, unless you’re certain of who will be receiving it. Follow these tips to avoid being hooked by a phishing scam:

· If you get an email or pop-up message that asks for personal or financial information, do not reply, and don't click on the link. Legitimate companies won’t ask for your personal information through email. If you are concerned about your account, contact the organization mentioned in the email using a telephone number you know to be genuine, or open a new Internet session and type in the company's correct Web address yourself. Never cut and paste the link from the message into your Internet browser — phishers can make links look like they go to one place, but they actually send you to a false site that’s used to steal your information.

· Don’t trust your caller ID. Some scammers call from what appears to be from a legitimate business and ask you to update your account in order to access a refund. With the help of Internet phones (VoIP), these callers are becoming harder to trace. Scammers can alter your caller ID information to give the perception that the call is coming from a legitimate source (known as spoofing - Commissioner Bronson proposed the anti ID spoofing measure during the 2006 legislative session and quickly won unanimous support from lawmakers). If you need to reach an organization you do business with, call the number on your financial statements or on the back of your credit card.

· Review credit card and bank account statements as soon as you receive them to check for unauthorized charges. If your statement is late by more than a couple of days, call your credit card company or bank to confirm your billing address and account balances.

· Victims of phishing can become victims of identity theft. While you can't entirely control whether you will become a victim of identity theft, you can take some steps to minimize your risk. If an identity thief is opening credit accounts in your name, these new accounts are likely to show up on your credit report. You may catch an incident early if you order a free copy of your credit report periodically from any of the three major credit bureaus. See www.annualcreditreport.com for details on ordering a free annual credit report.

For additional information give us a call today at 1-800-HELP-FLA (435-7352) calling within Florida, 850-488-2221 outside of Florida, 1-800-FL-AYUDA (352-9832) en Español. You can also visit us online at www.800helpfla.com.

Remember ... consumer education is the best defense against fraud and deception!

Infants and Toddlers First Annual Conference 2008

Infants and Toddlers
First Annual Conference

Saturday, March 15, 2008

Infants and Toddlers Circles of Care™ is a non-profit, one-day, action-packed educational event conducted by Child Care of Southwest Florida with the Office of Continuing Education, Edison College, Collier County campus and a number of recognized educators of infant and toddler care givers.

Conference Center
Edison College
7007 Lely Cultural Parkway, Naples

For Child Care Providers! For Moms! For Nannies!
For Babysitters!
Learn about caring for the littlest ones……..

The first annual Child Care of Southwest Florida’s Infants and Toddlers Circles of Care will be held on Saturday, March 15, 2008 at the Conference Center on the Collier County Campus of Edison College. This event is being developed through a partnership with Child Care of Southwest Florida, the Continuing Education Department of Edison College, Collier County campus and a number of partnering organizations.

The event will begin at 8:15 a.m. and conclude at 5:00 p.m. There will be keynote speakers during lunch. During the day, hour-long concurrent sessions will be held in the classrooms and meeting rooms in the conference center. An exhibit area will be open during the morning and afternoon breaks and immediately following lunch.

Luncheon Key Note


Nanny 911's Yvonne
Are your toddlers sneaking into the pantry as you read this? Quick, go check. Stop right here. Nanny Yvonne says there is a way to change it. Relieved? Come meet Nanny 911’s Yvonne, just for fun!!

For information about the conference please contact

Dr. Beth Hagan

BHagan7@aol.com or

239-947-8085.



Infants and Toddlers Circles of Care™
AT A GLANCE

8:00 – 8:15 Exhibits Open

8:15 Welcome and Opening Remarks

8:30–12:30 Track B – American Red Cross Infant CPR Training

Track A – Caregivers and Parents

8:30 – 9:30
Concurrent Sessions
A. Tips to Make Your Newborn Smile, Reisha Brown, MD
B. Effects of Trauma on Infants and Toddlers, Linda Bluhm, LCSW
C. Using Songs and Finger Plays as Teaching Tools, Darline Pinheiro
D. Infant Nutrition, Brenda McGhee, MD

9:35 – 10:30
Concurrent Sessions
A. Become Expert in the Life of Your Down Syndrome Child,
Eliana TardioHurtado
B. Issues of Pediatric Hearts, Robert Vogt-Lowell, MD
C. Recognizing the Signs of Child Abuse, Abbe Finn, Ph.D.
D. New Mom? How Not to Mess Up, Mary Lewis, MSW

10:30 – 11:00 Networking Break - Exhibits Open

11 :00 – 11:55
Concurrent Sessions
A. Is my child too young for a dental visit? Daniela Rodriques-Silva, DDS
B. Respectful Diapering and Toileting That Works, Kim Fritz
C. Every Baby Deserves a Healthy Start, Judy Nuland, MSN, RN
D. Bringing Up Your Bilingual Child, Gretel Caseres

12:00 – 1:00 Luncheon

Panel of Sponsors - Keynote Address

Nanny Yvonne from Nanny 911

1:00 – 1:15 Networking Break - Exhibits Open

1:15 – 3:10 Track B - First Aid Training for Infant and Toddler Caregivers
(Attendance at morning CPR training session is required.)

Track A – Caregivers and Parents
1:15 – 2:10
Concurrent Sessions
A. The Importance of Exercise, Barbara Rumberger, MD
B. Speech and Language Development, Dee Fish, MS, CCC-SLP
C. Active Learning for Infants and Toddlers, Ana Rodriguez & Peggy Janitz
D. Florida Birth to Three Learning and Developmental Standards in Everyday Moments, Corinne Nelson, RN

2:15 – 3:10
Concurrent Sessions
A. Supporting Infants and Toddlers Language and Literacy Development,
Donna Hernandez
B. Autism and Applied Behavior Analysis, Armando Galella, MPA
C. Not All Smiles Are Happy, Janet Seigel, RDH
D. Infant Social-Emotional Development, Deidre Winder, Ph.D.

3:10 – 3:30 Networking Break - Exhibits Open

3:30 – 4:30
Concurrent Sessions
A. Ain’t Misbehavin’ – Positive Discipline Techniques, Sara Mader
B. What do we know about a baby’s brain? Diane Ponton
C. The Wonderful World of Infant Care for Newborns, Fran Starr
D. How to Calm a Baby, Jamie Griffin, MD

4:30 – 5:00 Plenary Session

Final Keynote
Awards
Prize Drawings
Verification of Attendance for Certification Requirements
Distribution of Scholarship Funds

5:00 Sponsors, Presenters and Exhibitors Reception

CPKidz Wine Tasting Event

WINE TASTING EVENT
Proceeds to benefit “CPKidz (Cerebral Palsy), Special needs for Special Parents”


WHEN: Friday, April 4th, 6:00 - 8:00 p.m.
WHERE: VINO 100
PARK SHOPS AT ANDREA LANE
14261 S. TAMIAMI TR FT. MYERS
ADMISSION: $25.°°/PERSON IN ADVANCE or $30.°° AT THE DOOR

DON’T MISS THIS OPPORTUNITY TO BID ON SILENT AUCTION ITEMS AND SAMPLE WINES FROM AROUND THE WORLD. WINE WILL BE AVAILABLE FOR SALE AND $1 FROM EVERY BOTTLE SOLD WILL GO TO THE “CPKIDZ” NON PROFIT ORGANIZATION.

“CPKIDZ” IS THE FIRST LOCAL SUPPORT GROUP AND NON PROFIT ORGANIZATION FOR KIDS WITH CEREBRAL PALSY. “CPKIDZ” IS WORKING TO CREATE PUBLIC AWARENESS, PROVIDE RESOURCES, ALONG WITH SUPPORT FOR THE PARENTS.

TO RESERVE YOUR SPACE PLEASE RSVP BY APRIL 2ND, CONTACT CHARYSE OR MIKE AT (239)789-8443
SPACE IS LIMITED

Ada' s First Annual Banquet to Benefit Lee County Autism Charities

Ada’s First Annual Banquet to Benefit Lee County Autism Charities
Friday March 14 - 8pm to 11pm
1242 S.W. Pine Island Road in Cape Coral

This is an invitation only to our semi-formal event! Tickets are limited!

$ 100.00 per person

All proceeds will go to Autism. Events will include; Full organic gourmet hot bar, a silent auction, gluten free & product sampling, educational information, local representatives from Autism Chapters, alternative care information, and much more.
For information Please contact: John Phipps at 239-772-9601

Menu To Include:

* Organic free range Chicken Cordon-Blue w/Applegate Black Forest Ham.

*Florida wild caught Key West Pink Shrimp.

*Organic free range Roasted Prime Rib.

*Organic Artichoke Pasta Alfredo.

*Organic French Au Gratin Potatoes.

*Wild Caught Alaskan Sockeye Salmon.

*Organic Niman Ranch Roasted Pork Tenderloin & Root Vegetables.

*Organic New Zealand Lamb and Mint Couscous.

*Organic free range Seared Beef Tenderloin.

*Open Salad and Desert Bar!!

The Flourish Network

The Flourish Network is a new web based community designed to be a safe and secure place for families of children with special needs to share. Families who visit Flourish can find people who understand, start a conversation, ask a question, or just read what others are talking about. They can meet other people, make new friends, and share their story. You can learn more about the Flourish Network by visiting www.flourishnetwork.org

Best Buddies

http://www.bestbuddies.org

Best Buddies ® is a nonprofit 501(c)(3) organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.

Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a vibrant, international organization that has grown from one original chapter to more than 1,300 middle school, high school, and college campuses across the country and internationally. Best Buddies programs engage participants in each of the 50 United States. We have accredited international programs on six continents with additional country programs under active development. Our six formal programs – Best Buddies Middle Schools, High Schools, Colleges, Citizens, e -Buddies® and Jobs – will positively impact more than 350,000 individuals this year. Best Buddies also is systematically implementing our 2010 initiative that will witness the organization's continued significant growth, both domestically and overseas. Best Buddies volunteers annually contribute services to the community that equate to more than $70 million USD.

Even though Best Buddies has advanced tremendously in our short existence, many areas of the country and many regions of the world still lack programs to help people with intellectual disabilities become part of mainstream society. Our goal is to continue expanding nationwide and at the local community level, while more broadly engaging the global community through our programs

A beautiful story about inclusion

http://www.morningsun.net/stories/110507/loc_215012438.shtml

Down Syndrome... can't keep this boy down
By Nikki Patrick | The Morning Sun

A little anxiety is normal when a mother takes her child to school for the very first time, but Kristy Rasnic was more worried than most when she took her son to kindergarten at Meadowlark Elementary School.

The youngster, Steve Melton, now 10, was born with Down syndrome.

"One of my biggest fears when he started school was that I did not know how others would accept Steve," Rasnic said. "But now I can leave him and not worry. I don't think the other kids see him as being different."

Steve's educational program is one of inclusion. For around 25 percent of his school time, he receives special services in Lynn Martin's classroom, including speech and occupational therapy. The other 75 percent of the time, he's in Abby Graham's primary class, accompanied by Jesse Bartley, a paraprofessional.

"Just about any lesson can be adapted to find something that Steve can do," Martin said. "Right now he's learning to read, learning to print, learning some easy addition."

"I have him answer with us, reading from his book with us, looking at the pictures and answering questions," Graham said. "I'll walk over and look as his work, just as I do with the other students. Having him with us is a very positive thing."

"Today it was really fun," Bartley added. "They did a lunchroom survey and asked about favorite foods in the cafeteria. Steve said ‘cheeseburger.' When they voted, he raised his hand when they said cheeseburger."

"We have a community-based program, and a teacher takes the students out into a community setting to practice social skills and manners," Martin said. "For example, they went to a restaurant with a buffet, and now Steve has no trouble at all going through a buffet line."

Steve is also a favorite in the school library, and currently loves "Clifford" and "Curious George." "He knows right where those books are," said Vicki VanBecelaere, library medical specialist.

October was Down Awareness Month, and VanBecelaere put up a special exhibit on Down syndrome in the library, using books and materials provided by Rasnic. "I couldn't tell them everything about Down syndrome, but I could introduce it to them," she said. "I think it's important for the kids to understand that all children are the same — but some are different, too."

Rasnic provided materials from the Down Syndrome Guild of Greater Kansas City, including some very special bookmarks featuring a picture of Steve and the slogan "Friends don't count chromosomes. Be a team player support people of all abilities."

"I ordered 450 bookmarks, and they're all gone now," Rasnic said. "I've got to get more."

She said that she became associated with DSG after her son's birth. "I had known people with Down syndrome before, but I really didn't know anything about it or what caused it," Rasnic said. "At first I thought I had done something wrong that made this happen."

She became an advocate, not only for her own son, but for others with disabilities. "I do case management, and through Families Together, I advocate for children with special needs who don't have families," Rasnic said. "And I don't back down — don't tell me no."

Inclusion was the biggest thing for her, and for the rest of Steve's family, including his father, Steve Melton, and older brother Seth, 15. "We all agree that Steve has to be treated the same as any other kid, because it's a rough world out there," Rasnic said.

It got a little more difficult when Steve was diagnosed with diabetes five years ago. Now he's doing well with an insulin pump. A recent hospital stay showed Rasnic just how well accepted her son is at school. "He received three balloon bouquets and 42 cards," she said. "Some days I can't get him to school fast enough."

"Sometimes I can't get him out of the classroom," Martin added. "I think the school has become an extension of Steve's family."

She noted that inclusion isn't appropriate for every child with special needs, but works beautifully for Steve. "It's worked well for the other students, too," Martin said. "They've learned a lot from Steve. He has helped them become better people."

Tuesday, February 12, 2008

Update

We here at Celebrating Abilities Inc are so excited about the new year!
In the coming weeks, we’ll be applying for 501c3 nonprofit status, which will entitle us to begin to raise money to support our program and the many activities that we can’t wait to plan.
Activities such as: Playgroups for the 0-5 age group, Teen groups, sibling outings, Parent’s Night Out, Coffee Chats and more!

Please take a moment to email me any requests or concerns that you may have, as well as your contact information, so that I can keep you in the loop with all our exciting updates and activities! I will also be providing you with resources from time to time that may be helpful to you. Please include your name, address, phone number, email address and birthday information for both you and your children.

Thanks!

Jacqui Hawkins
Jacqui7315@celebratingability.com